Midwest Radio

HSE decision causes heartache for DMD sufferer

On Wednesday the HSE decided against funding for #Translarna a life changing drug for Duchenne Muscular Dystrophy (DMD)an illness which affects Ann Marie Lewis Walsh's son, Lewis. They waited for months for the decision and fought for Ireland to consider the drug that 20 other EU countries, including Northern Ireland and England make available to sufferers. Ann Marie told the whole story to Tommy and wondered what next for her son.

 

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