Mayo Senator Rose Conway-Walsh says that the ending of legal proceedings between the HSE and the drugs company PTC, offers a real chance to provide sufferers of Duchenne muscular dystrophy with the Translarna drug without delay.

 There are five children in Ireland diagnosed with the condition at present and one of them is a young Castlebar boy.

In the Seanad this week, Senator Conway Walsh  asked the Minister for Health what plans were in place to provide the treatment, given the changed circumstances.

It is now necessary to have Translarna treatment covered by the HSE.

The last application to do so took almost three years and she insists that any fresh application must be be processed without delays.

Speaking to Midwest News this afternoon Rose Conway Walsh said the HSE needs to negotiate the price of Translarna with PTC.

The five children with Duchenne Muscular Dystrophy who are eligible for translarna to effectively treat their condition cannot afford to wait any longer.  Every day that goes by brings them one step to losing their mobility.  I hope that we will see a positive outcome this time round for these children and their families.   


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